I just want to add a couple of comments in addition to what Dan and Eileen have said.
This past weekend was probably the worst one I have had to date. Caregivers now have to clean Mom up after she uses the toilet. She just doesn't have the strength to do it herself. Ask Maggie and Gwen, they will tell you the same. Maggie says she is now brushing her teeth. Mom can only get the toothbrush to her mouth, but not actually brush. I watched her eating a bowl of cereal and she could barely get the spoon to her mouth(today). She was waking up about every 1.5 hours yelling for Morris. When I went in she was complaining she couldn't breathe. I would move her to an upright position(using the new bed) and it would help. Gwen called me last night saying the same thing happened to her last night.
I am all for starting the reverse mortgage process and applying for a nursing home now. Hopefully Tim can let us know what he found out in April.
The eye doctor said her eye is in pretty good condition. No changes . We will continue to apply the gel 2 times a day. Next appointment will be in January, unless the eye becomes very red again.With Moms condition, the chair lift would have helped. Dan and I had to take time off work to get her down the steps using the wheel chair.
Tom
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Just to add to the comments, Gwen experieinced what Tom did and was concerned enough to request we come over. She reported that Mom was constatntly wheezing, veins popping out in her forehead, gray color around the lips, constant agitation and feeling the need to sit while calling out for Morris. By the time I got over there, she had repositioned Mom and I raised the head of the bed which helped. I stayed about an hour and did observe what Gwen reported but I think there is obviously some periods of time when breathing is real issue.
fyi - the head of the bed should always be raised ... this needs to be published to caregivers ... even when it is raised, H. will work her way around that in her sleep (sideways in bed) ... that will need to be monitored by overnight caregivers.
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