sunday nov 25 3:30pm

managing ok on my own Sat and Sun ... Maggie is back on Monday ...
after a quiet Sat day, Sat night was non-stop moaning ... only two stretches of about 10min each did H get some sleep ... I sat in the room with her as much as I could, as she did ask me to do that ... some of my probing yielded a response that it is her head that hurts, like a headache. She requested water over and over. Tylenol does not appear to provide any relief.
Morris came over today, was shocked/saddened (my interpretation of his body language) by what he saw/heard ... he will be back Monday ...
I canceled Sunday's communion visit by Jackie Smith, anticipating a rough day due to the prior night.
Food intake volume is really light ...
She is very aware of surroundings, made a comment on a news story that was on tv at the time, said to me "I have to stop making noise" during the non-stop moaning ... Sometimes the moaning seems like a mantra to distract from thinking about her situation and not really a response to physical pain (although I am sure that is always present)...
H, sitting in tv room in w-chair, commented that it was difficult to breathe, but did not want to go to bedroom and bed (where lie-down position might make that easier).
Gwen has agreed to do Sunday night as part of her regular schedule, cannot take on Friday night or Sat-day or Sun-day.
I will ask Maggie about making Friday a regular night on her schedule.
This is the start of the activity to get 24x7 outside caregiving arranged, to relieve kids of hard requirement to be present at 14 Ivanhoe in role as caregiver. Weekend schedule for kids will still be maintained as supervision and monitoring needs to take place and at least some drop-in time to observe in person.
Once thie 24x7 caregivers are on board, the kids can concentrate on the other things that need to be done.
This plan came about very recently - Eileen and I chatted on Fri/Sat(?) and discussed.
Paying for the outside care will be done using existing HELOC as much as possible. when/if that runs out, take MK/Bob up on offer to fund with additional mortgage-type financing (that is my understanding of MK/Bob offer, obtained 2nd hand via Eileen's blog post, if not correct, I apologize).
that's all for now ...